Sloan Kettering NYC update

 Hi! 

We had an excellent experience and meeting with Dr. Tiffany Traina and team at Sloan-Kettering in NYC. They had already reviewed my chart, history, scans, and test results and collaborated with all of the drs about a plan for me.  They are the best in the world that’s for sure! 


-We are going to drop the Ibrance plan. Since it’s caused so many problems she said “forget that” - no way I should try again. They don’t even use that as the first course there anyway, because it does not extend life it only lessens progression.  Ibrance is a palbociclib type drug. It is likely caused lung toxicity and that is why my COPD has become severe. 


-I’m going to go on Kisqali, which is a ribociclib type which blocks cancer cells from growing and actually does extend life expectancy unlike Ibrance. It’s normally three pills per day, on for three weeks, off for one week, but we are going to try two pills per day to make sure that I don’t have any unmanageable side effects. I do have to have an EKG weekly for the first month.  I just had an EKG to get a baseline. I’m having an echocardiogram too on November 24.  I do have to be careful with drug interactions on this drug.  


-she was insistent that I have scans every 3 months… That is their protocol so I’m going to make sure this happens from now on. I’m due for scans right now. Also need a bone scan.  


-for prognosis… She expects that I should certainly have 5 years and she said if anybody can make it to 10, then I can!! it is in my bloodstream but since it took 15 years to show back up, she thinks it is very slow growing. They could tell from my last scan that my cancer spot is already regenerating healthy bone in the tumor spot. That’s fantastic!  


-there are new drugs being developed all the time so stay tuned for whatever is new in the next few years!


We love you all thank you for your thoughts, prayers and all positive vibes for us. We truly do appreciate it! 


Hugs and love!


Chill 


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