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Showing posts from November, 2025

Sloan Kettering NYC update

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  Hi!  We had an excellent experience and meeting with Dr. Tiffany Traina and team at Sloan-Kettering in NYC. They had already reviewed my chart, history, scans, and test results and collaborated with all of the drs about a plan for me.  They are the best in the world that’s for sure!  -We are going to drop the Ibrance plan. Since it’s caused so many problems she said “forget that” - no way I should try again. They don’t even use that as the first course there anyway, because it does not extend life it only lessens progression.  Ibrance is a palbociclib type drug. It is likely caused lung toxicity and that is why my COPD has become severe.  -I’m going to go on Kisqali, which is a ribociclib type which blocks cancer cells from growing and actually does extend life expectancy unlike Ibrance. It’s normally three pills per day, on for three weeks, off for one week, but we are going to try two pills per day to make sure that I don’t have any unmanageable sid...

Update Nov. 10th

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 Hello all, Team Chill here with Chuck doing the update.  We have not posted in a while and have had some requests for an update.  We are honored and humbled that y’all are holding us in your thoughts and prayers.  We draw inspiration and strength knowing this. I want to make up for an unacceptable non-acknowledgement from our last post.  We shouted out the names of folks that helped us with the move.  Formal thank you notes will be going out soon.  Shortly after we posted we realized that we did not recognize Langley Heating and Air.  On the day of our move (The hottest day of the year by the way), wouldn’t you know that the A/C went out at our new house.  Jill called Langley and Kaleb personally came out and got us up and running on a Saturday.  That was above and beyond the call of duty and we were and are so appreciative of Kaleb and his crew.  They are awesome!! Now for the update…First off…we are doing well.  We have some...